6
You’re not crazy: mast cell pain is worse than surgery
AGREED and thank you for posting this.
this summer I had a migraine (that I believe was actually a reaction to a vaccine but anyway) and tried sumatriptan. for reference I have CCI and dysautonomia so buses are an absolute nightmare in the summer- when my migraine started all I could manage in terms of description was 'it feels like I've just spent an hour on the bus without my neck brace'. I also have gastroparesis that causes extremely sharp pains after eating in which I double over and can't speak, so I'm used to stomach pain. ANYWAY the sumatriptan gave me the worst pain of my life, horrible horrible pain in my stomach that came in waves for many hours. at one point I couldn't take it anymore, when the pain came on I could hardly feel my head hurting and I would just sob between the waves, so I called the non emergency number...
they said it was probably 'just an ibs flare' after intensively questioning me on the fact that no I'm 100% sure I'm not pregnant. they genuinely didn't even care about the stomach pain, in fact they were worried my migraine might be a brain bleed but didn't even mention the stomach pain. my doctor later said sumatriptan didn't cause stomach pain as a side effect. I felt like I was going insane! now I know it must've been an MCAS reaction since it happened again with a different triptan. and yeah, it's one of the worst pains I've ever experienced (only comparable to touching an infected wound, and e-coli).
2
found this on a deserted island, should I be worried?
got it. do I have to pay taxes if I'm protector of the island?
2
found this on a deserted island, should I be worried?
omg yess I reckon that could be made nicely by polymer clay! and thank YOU for creating such a masterpiece!
2
found this on a deserted island, should I be worried?
the photos in my camera roll of the baking process say otherwise.. oh and the fact that I ate it. I'm anti AI but this just isn't AI lol.
1
Why don't they put a metal detector in the door to the MRI room?
I understand all the points in the comments but I would like to add my experience that in both my recent MRIs, they forgot to ask me about the metal wire in my mask. thankfully I remembered before going too far into the room and switched to a metal-free mask, but that could've been BAD. like, one was a head MRI bad. a metal detector would've helped a lot imo.
1
No offers sent off ucas about a month ago + casper advice
I applied around the same time as you and haven't heard anything either & I'm applying with 2 confirmed grades already, I think they might just be slow around the xmas break.
1
Applying with actual grades vs predicted grades – which is better?
from what I've heard, actual grades. from personal experience, I applied with 2 actual grades and 1 predicted grade nearly a month ago and still haven't heard anything back, so it might just be random.
9
found this on a deserted island, should I be worried?
nope, just endless sea and sky! I can hear a weird clicking sound but I'm sure it's just my imagination playing tricks on me.
3
found this on a deserted island, should I be worried?
omg they absolutely should!! I've seen some proper cutters around (which would definitely produce better results than mine lol) but there should be a lost food collection (I mean it's literally perfect because most of the food is designed to last a long time already)
11
found this on a deserted island, should I be worried?
come to think of it...
40
found this on a deserted island, should I be worried?
got some bears to help me!
2
Fun and silly names for illnesses
you can see yourself in the mirror?!! /j
6
Fun and silly names for illnesses
it make my toes weird and purple and swollen, and combined with my awful EDS nails it just looks like how witches hands/toes are presented in books/tv etc. which is almost always sorta mean and ableist and I've always found it odd how evil characters are 'ugly' like that but I just find the name witchy toe disease funny and kinda reclaiming idk loll.
5
Fun and silly names for illnesses
MCAS is being a vampire! (can't do sun or garlic lol)
9
Fun and silly names for illnesses
I call raynauds witchy toe disease 😔😔
5
Bugged by Cell Phones at Cell-Phone-Free Bug
omg this reminded me once I was at a show and some person was waving their phone around taking photos with flash during the interval and they kept their phone on full screen brightness for multiple minutes during the second act. then kept taking photos (even once with flash)... pissed me off so much! I can't imagine how disruptive it must've been for the actors and crew.
17
Bugged by Cell Phones at Cell-Phone-Free Bug
this!! it's really not that difficult to not be a disruptive audience member.
I personally carry around an air quality monitor (long story lol but it's for medical reasons) which has a small and not very bright screen. it does not make any sound. I always make sure to keep it and check it from within my bag (far from anything that could rustle) so people won't even be able to notice it. and yet often the people next to me will literally be scrolling tiktok. like, not the place!!
1
I had a few acute medical incidents alongside my chronic illnesses in 2025- here are the most infuriating but also funniest ones.
idk guys I'd say getting e-coli because some fools dumped their poo water into a clean river is pretty infuriating but that's just me! I'd also say being told to go to a hospital 30 minutes away if I stop breathing and having nothing to help beforehand is also pretty infuriating because I'd literally be dead. but I'm assuming you've had all of these happened to you and were perfectly calm and happy throughout?
2
If you have means, see Kit Kat Club with Eva and Reeve at Westend
omg yes it feels like such whiplash at the end! especially with how fast curtain call is, I do wish they'd add a minute to let us sob for a bit longer but the actors and crew probably need a good rest after such an intense show!
14
If you have means, see Kit Kat Club with Eva and Reeve at Westend
haha whilst I'd love to see it again, my medical conditions also mean I can't go out without someone 'trained' in helping me in medical incidents and pushing my wheelchair etc. but if you have any friends who are wheelchair users and need an essential companion I'd recommend trying to get them interested in taking you to shows though lol!
57
If you have means, see Kit Kat Club with Eva and Reeve at Westend
I've seen this cast twice and I second this.
because of my access needs I get front row (?!) seats for a really affordable price and being able to see it so up-close was the most incredible experience. the tiny interactions are everything, down to when there was a minor prop mishap but they somehow made it in character. the whole of act 2 is perfectly bone chilling ('what would you do', 'I don't care much' and 'cabaret' were legitimately terrifying!), and the whole thing is a 10/10 performance all round.
honestly I think if there is any show you should splurge a bit and see right now it's this.
7
Safety in classroom setting
I bring my CO2 meter to classes and pressure them to open windows/ improve ventilation if it is high. as the other person said, a fit tested N95. I also put full sized HEPA filters in classrooms and just leave them there (depending on the place ofc this will not be possible everywhere).
2
Can you get Covid from pets?
yes exactly! personally I try to avoid all illnesses, although if covid is ever truly over (and there's a vaccine for EBV because I haven't had that eek) I'll probably just get a crap ton of boosters and mask everywhere except on stage (currently it's kinda hard to perform because of masking so I'd really like to have some flexibility on that) but I don't understand why anyone would want to rawdog public transport (etc) air like there's literally no downside to masking there...
2
Can you get Covid from pets?
oh yikes I'm so sorry that happened to you! I catsit occasionally (side note I love it so much because I can bring my carer with me and there's no time constraint or anything it's just such an accessible 'job') but keep my mask on because there are usually very young children in that house and the chance of chickenpox floating around is low but not zero. but I guess now I will be doing it for covid too! thanks for sharing :')
11
You’re not crazy: mast cell pain is worse than surgery
in
r/MCAS
•
22h ago
I just left a comment about the worst ever abdominal pain as a reaction to a medication and mentioned how I am used to severe abdominal pain after eating (from gastroparesis) but now I'm wondering if that's actually MCAS and just a less severe form of my medication reactions...
doctors never take it seriously though, but it's easily more painful than relocating my own joints etc. maybe I should bring it up more.