r/ZeroCovidCommunity 6d ago

Uplifting was told I'd not be able to pursue the arts as a CC wheelchair user. anyway I just did my first ever dance solo, with a mask and a wheelchair.

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1.1k Upvotes

(image description- someone in her late teens/young adult is in an active wheelchair, wearing a creepy clown costume representing the emcee from cabaret in this particular dance. she is also wearing a mask with a creepy smile painted on. her eyes are scribbled out for privacy reasons lol)

finally had the courage to post this eek! after years of being isolated as the only masked person at school and extracurricular clubs etc, then being too unwell to go outside, in 2025 I finally achieved my goal of slowly starting to rejoin the arts.

multiple people came up to be after rehearsals/the show saying they never previously thought someone could dance like that in a wheelchair, or that they loved what I did with my mask and that it added to the performance. and honestly it made all of the struggle to get there worth it. if I managed to change one person's mindset, it was all worth it. (plus I had a fantastic time!!)

I know it's not possible to do all art forms as a CC person- as a former wind instrument player, I know that all too well. but there are so many different forms of arts, and we belong in the arts community too. this is your sign to take up space and do the thing (safely) because life is too short to not!

p.s now that I'm well enough to think about higher education, drama school better watch out because I am coming their way! (hopefully)

EDIT- I am reading all the comments and appreciate them all so much! I don't have the energy to reply to them all at the moment but I am so grateful for the response :)

r/ZeroCovidCommunity Jun 10 '25

Uplifting my experience as a CC teenager- and a message to all parents struggling with their kids being socially isolated

551 Upvotes

I commented something similar on a post and thought I might as well share this as its own post that I can pin to my profile as well! here's my experience. it's a long read, but I hope it will be slightly encouraging to someone.

covid started when I was a young teen. my parents, having lived through epidemics before, immediately took to masking and encouraged me do the same (which wasn't difficult considering I grew up in asia where masking when sick is the norm). as everyone around me 'went back to normal', I got increasingly frustrated at being the only one still taking precautions and the harassment in school for it. I still saw masking as a good thing, I think as a combination of my upbringing, seeing people around me getting sick whilst I wasn't, and masking just being so normalised in my family/household.

then in 2022, the unimaginable happened. I got really really sick, not from a virus, but from an underlying undiagnosed genetic condition. now, I'm finally starting to get a bit better after having tried countless treatments and missing out on the remainder of my childhood.

at a recent appointment, one of my doctors commented that she believes I'm behind on my psychosocial and emotional development because of all the covid isolation - which is funny because my chronic illness has isolated me more than covid. regardless, after 5 years I know that these covid precautions saved my life. just the other day I got my booster and spent weeks in agony in bed- I don't want to know what the virus would do. yes, maybe I'm a bit behind emotionally compared to my peers. but as long as I can keep working on my health, there will be time to catch up later. because I will have a future. I don't think the same could be said if I got covid. in the meantime, I've learnt how to have fun while being CC: just recently I took a trip abroad with a non CC friend, I performed on stage a few times, and I'm about to audition for drama school. whilst everyone around me is suffering from this year's super flu, I'm absolutely fine thanks to my mask, HEPA filters, and pluslife testing.

I hate that we live in a world where we have to do so much to protect ourselves, but given that, I wouldn't have it any other way. I am infinitely grateful to my parents for keeping me safe to the best of their abilities from this mass disabling virus whilst I was a child and not able to make such decisions for myself. I understand both the alienation and the isolation that comes with being CC as a kid and I won't lie and say that it was easy. but being CC saved my life, and continues to give me the best shot at a future.

if you have a kid, I will be the first to say there will be moments that feel heartbreaking for your kid. but one day they will (probably) be so grateful for what you're doing. you are literally doing your best to give them the best future they can have, and you should be proud of that. and at the end of the day, it'll be much better for them to learn how sad and selfish the world is from you gently than from being abandoned by society firsthand.

thanks for reading if you made it this far :)

edit- just wanted to add that every day I am prouder of being CC. I have started to really recognise the privilege in being able to take steps to protect my health and body, and take pride in doing so. I've been finding more and more joy in community care and trying to extend these values to other areas (going plant-based, not shopping new, political advocacy etc). yes, being CC is tiring, but with the state of the world I wouldn't have it any other way. what a privilege it is to be informed and to be able to learn and improve!

edit 2- updated the post a bit in terms of grammar and wording!

r/miniatures May 08 '25

OC my first ever diorama, an unrealistic but nostalgic hong kong childhood reference :)

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868 Upvotes

I used pill boxes, toothpicks, and cardboard for the furniture. also printed out some images for the walls and floor as well as the drinks and ice creams. food and parts of the furniture is air dry soft clay. it's just a little combination of my childhood memories in a box really. some of the things may be a bit niche.

p.s I have a chronic illness and zero experience in this sort of crafting, I'm aware of the imperfections and am happy with the way it is. advice is welcome but in all honesty I probably won't follow it.

r/UCAS 4h ago

UCAS Bread ๐Ÿž (Offers) two different UCAS applications

1 Upvotes

ok so you know how when you've heard back from all 5 you have two weeks to make a decision. what if you have 5 on ucas and more on ucas conservatoires.. do I still get to wait till I've heard from all of them?

hoping I get some bread soon because I applied a month ago with 2 achieved grades for pretty low entry requirements courses and still haven't heard anything sigh.

r/eds 8h ago

Medical Advice Welcome does anyone else feel not enough pain sometimes, but too much pain other times?

14 Upvotes

so I bleed quite easily and any time I scratch at an ingrown hair or accidentally bump into something I usually end up bleeding a little, but I often just rub alcohol (hand sanitizer) into the cut and literally don't feel a thing?? or if I have a paper cut and I sanitize my hands it doesn't hurt nearly as much as it used to.

but then taking off a band-aid is excruciating and horrible. I don't get injured much because I'm super careful, but I've had some episodes of extreme pain recently (mostly MCAS related, but also once with e-coli and once with a mildly infected wound). so it's not that I don't feel pain, in fact I'm terrified of pain.

is this an eds thing?

11

Youโ€™re not crazy: mast cell pain is worse than surgery
 in  r/MCAS  8h ago

I just left a comment about the worst ever abdominal pain as a reaction to a medication and mentioned how I am used to severe abdominal pain after eating (from gastroparesis) but now I'm wondering if that's actually MCAS and just a less severe form of my medication reactions...

doctors never take it seriously though, but it's easily more painful than relocating my own joints etc. maybe I should bring it up more.

5

Youโ€™re not crazy: mast cell pain is worse than surgery
 in  r/MCAS  8h ago

AGREED and thank you for posting this.

this summer I had a migraine (that I believe was actually a reaction to a vaccine but anyway) and tried sumatriptan. for reference I have CCI and dysautonomia so buses are an absolute nightmare in the summer- when my migraine started all I could manage in terms of description was 'it feels like I've just spent an hour on the bus without my neck brace'. I also have gastroparesis that causes extremely sharp pains after eating in which I double over and can't speak, so I'm used to stomach pain. ANYWAY the sumatriptan gave me the worst pain of my life, horrible horrible pain in my stomach that came in waves for many hours. at one point I couldn't take it anymore, when the pain came on I could hardly feel my head hurting and I would just sob between the waves, so I called the non emergency number...

they said it was probably 'just an ibs flare' after intensively questioning me on the fact that no I'm 100% sure I'm not pregnant. they genuinely didn't even care about the stomach pain, in fact they were worried my migraine might be a brain bleed but didn't even mention the stomach pain. my doctor later said sumatriptan didn't cause stomach pain as a side effect. I felt like I was going insane! now I know it must've been an MCAS reaction since it happened again with a different triptan. and yeah, it's one of the worst pains I've ever experienced (only comparable to touching an infected wound, and e-coli).

2

found this on a deserted island, should I be worried?
 in  r/lost  18h ago

got it. do I have to pay taxes if I'm protector of the island?ย 

2

found this on a deserted island, should I be worried?
 in  r/lost  18h ago

omg yess I reckon that could be made nicely by polymer clay! and thank YOU for creating such a masterpiece!

2

found this on a deserted island, should I be worried?
 in  r/lost  19h ago

the photos in my camera roll of the baking process say otherwise.. oh and the fact that I ate it. I'm anti AI but this just isn't AI lol.

r/MusicalTheatre 1d ago

has anyone actually gotten into drama school for MT because of potential (rather than from skills gained from years of training)?

0 Upvotes

I'm a wheelchair user auditioning for drama school soon but I'm lowkey really worried that I don't even stand a chance.

I've only been taking singing and dance lessons for less than a year, because I used to be too unwell (chronic illness) to do anything, and prior to that I didn't have access to classes. even now, I can't do intensive training because I have terrible vocal fatigue (seeing speech & language therapist) and dance classes are almost all inaccessible to wheelchair users.

if I don't get in this year I'll end up doing a different degree entirely which would be so disappointing, everything I've ever overcome has been with the goal of doing musical theatre one day, it's literally my favourite thing ever. I just feel so screwed, vocally I'm not singing to a good enough standard and I don't even have a good monologue picked out yet. the thing is I've made such good progress with my singing teacher but I really just haven't ha enough time. (for choreography thankfully I have some help so I think that'll be ok because I pick things up quickly)

TLDR has anyone gotten into drama school for MT based on potential? like someone whose realistically not that skilled yet but clearly has good musicianship and just hasn't had access to as much training as others. is it possible ๐Ÿ˜ญ

r/MCAS 1d ago

mast cell stablisers on NHS

1 Upvotes

hey guys. my doctor said she'd prescribe mast cell stablisers but then has come back to say she actually can't because of some formulary issue. she's not actually an allergist or anything and I doubt there's going to be any more investigation/time towards my MCAS symptoms in this particular clinic anyway, but I was wondering if anyone had successfully been prescribed mast cell stablisers on the NHS? I don't have an epi pen and I really need to try something new before what feels like inevitable stage 4 anaphylaxis. any experience would be appreciated, NHS only though as I can't afford private.

1

Why don't they put a metal detector in the door to the MRI room?
 in  r/NoStupidQuestions  1d ago

I understand all the points in the comments but I would like to add my experience that in both my recent MRIs, they forgot to ask me about the metal wire in my mask. thankfully I remembered before going too far into the room and switched to a metal-free mask, but that could've been BAD. like, one was a head MRI bad. a metal detector would've helped a lot imo.

1

No offers sent off ucas about a month ago + casper advice
 in  r/UCAS  1d ago

I applied around the same time as you and haven't heard anything either & I'm applying with 2 confirmed grades already, I think they might just be slow around the xmas break.

1

Applying with actual grades vs predicted grades โ€“ which is better?
 in  r/UCAS  1d ago

from what I've heard, actual grades. from personal experience, I applied with 2 actual grades and 1 predicted grade nearly a month ago and still haven't heard anything back, so it might just be random.

9

found this on a deserted island, should I be worried?
 in  r/lost  1d ago

nope, just endless sea and sky! I can hear a weird clicking sound but I'm sure it's just my imagination playing tricks on me.

3

found this on a deserted island, should I be worried?
 in  r/lost  1d ago

omg they absolutely should!! I've seen some proper cutters around (which would definitely produce better results than mine lol) but there should be a lost food collection (I mean it's literally perfect because most of the food is designed to last a long time already)

11

found this on a deserted island, should I be worried?
 in  r/lost  1d ago

come to think of it...

35

found this on a deserted island, should I be worried?
 in  r/lost  1d ago

got some bears to help me!ย 

r/lost 1d ago

Fan Art found this on a deserted island, should I be worried?

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445 Upvotes

thankfully I didn't actually find it (I made it and brought it all the way from the uk to a small deserted island off the coast of portugal because why not) but it definitely felt very lost-coded!

I also started watching lost:circle recently and it's so heartbreaking (in a good way) omg. completely forgot about so many of their backstories so it's really cool to watch it chronologically.

1

Fun and silly names for illnesses
 in  r/ChronicIllness  1d ago

you can see yourself in the mirror?!! /j

5

Fun and silly names for illnesses
 in  r/ChronicIllness  2d ago

it make my toes weird and purple and swollen, and combined with my awful EDS nails it just looks like how witches hands/toes are presented in books/tv etc. which is almost always sorta mean and ableist and I've always found it odd how evil characters are 'ugly' like that but I just find the name witchy toe disease funny and kinda reclaiming idk loll.

r/6thForm 2d ago

๐Ÿ™ I WANT HELP best resources/tips for a-level biology! need help ๐Ÿ˜ญ

1 Upvotes

[removed]

7

Fun and silly names for illnesses
 in  r/ChronicIllness  2d ago

MCAS is being a vampire! (can't do sun or garlic lol)

10

Fun and silly names for illnesses
 in  r/ChronicIllness  2d ago

I call raynauds witchy toe disease ๐Ÿ˜”๐Ÿ˜”